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Intro: (What is a Miracle? Faith…Hope…Love)
Oo…Oo
1st Verse: (Faith)
Beauty waits present in this unseemly form;
I rest. I wait.
Nestled where the clouds spend the night.
You, with unknowing eyes shall see,
Shall see this miraculous design.
Chorus:
And I shall Fly born in air aloft on painted wing
Wings, once held close, release.
Moved from darkness,
Darkness into light.
I await a miracle to fly.
2nd Verse: (Hope)
Miracle, Patient in the land of in between.
I rest. I wait.
Journey to a greater call.
Here, in the dark unseen I move.
Striving, yearning, turning to break free!
Chorus:
And I shall fly, born in air aloft on painted wing.
Wings, once held close, release.
Moved from darkness,
Darkness into light.
I await a miracle to fly.
Ah…Ah..Oo..Oo..
3rd verse: (Love)
Life renewed. Vibrant in the air beyond.
I see. I feel. Lifeblood flows drowsy from sleep.
Stretching, unfurling wings are filled.
Illumined as prisms in the sun!
Chorus:
And I shall fly born in air aloft on painted wing.
Wings, once held close, release.
Moved from darkness,
Darkness into light
I await a miracle to fly.
Fly away…fly away…ah (What is a Miracle? Faith,
Hope & Love)
Solo:
Miracles are caterpillars when butterflies have flown.
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The Diamond Blackfan Anemia Foundation,
Inc. (DBAF), founded in 1994, has adopted the following mission
statement: "to collectively and actively generate funds for the
charitable and scientific purpose of furthering, by clinical study,
laboratory research, publication and teaching, the knowledge of
the disorder known as Diamond Blackfan Anemia (DBA). Our intentions
are to share this knowledge, to inform, to lend support, and to
communicate with all families of DBA patients."
The DBAF is a 501(c)(3) not-for-profit corporation
registered with the Charities Bureau of New York State Department
of Law, 120 Broadway, New York, New York 10271.
The DBAF supports itself solely through donations and is staffed
exclusively by volunteers. The DBAF funds medical research projects
which directly or indirectly benefit DBA patients and which are
approved by the DBAF's medical/scientific advisory board comprised
of medical doctors and scientists. The DBAF organizes meetings which
bring together DBA patients, families, and world-renowned physicians.
The DBAF provides informational literature to patients, DBA family
members, health care professionals and other interested parties.
The DBAF networks approximately 300 - 400 DBA families throughout
the United States and Canada. The DBAF publishes a semi-annual newsletter
containing personal DBA stories, DBA clinical trial information,
current research, and DBAF activities. The DBAF is a separate legal
entity from the Diamond Blackfan Anemia Registry (DBAR) located
at Schneider Children's Hospital, Division of Pediatric Hematology/Oncology
and Stem Cell Transplantation, 269-01 76th Avenue New Hyde Park,
NY 11040.
P.O. Box 1092
West Seneca, New York 14224
dbafoundation@juno.com
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