Global News Calgary Baby Journey's Story

 

 

Strongsville Teen Lives with Rare Disease. Strongsville Patch. August 29,2011, by Gina Ragone.

 

 

Fred and the Astronaut. The Drew family visits John & Annie Glenn in Columbus, Ohio. April, 28,2011.

 

 

Thank you Bond Family for touching our lives!!

Captain Courageous "Fix You" DVD 2011 from Captain Courageous on Vimeo.

 

 

Boy with Rare Disease Inspires Donations of Blood and Kids' Band-Aids. Liam Gorman, 6, Shows the Importance of Blood Drives and Cool Band Aids. By MIKAELA CONLEY, ABC News Medical Unit. February 2, 2011. Six-year-old Liam Gorman inspired others to give colorful band aids and blood to help kids in need. Liam and his parents were overwhelmed by the response.

 

 

Mystery Diagnosis - Kylie Monica's Miracle - Oprah Winfrey Network. January 26, 2011. Thank you Monicas for sharing your story and helping to spread the word about DBA!

 

 

Freezin' for a reason. The Item, The Banner. January 28, 2011.

 

 

Windsor 9-year-old girl and family dealing with rare blood disorder. By T.M. Fasano. Windsor Now! October 22, 2010.

 

 

Families of children with rare blood disorder find hope at Camp Sunshine. WCSH6 News. Portland, Maine. July 16, 2010.

 

 

A little girl gets her wish, by David Maccar. April 12,2010. Burlington County Times.

 

 

Young fundraiser dedicated to funding cure, by Ken Cleveland. March 26, 2010. The Item.

 

 

Something quite rare and remarkable in Big Sky Country, by Betty Londergan. February 24, 2010. What Gives 365.

Blood Drive for Deliah, by Michael Moore. February 22, 2010. Missoulian

 

 

Delivering hope: Lauren has a rare genetic disease. On Friday, she welcomed a new sister whose cord blood could cure her. But it isn't that simple, by Deborah L. Shelton. February 14, 2010. Chicago Tribune.

We are happy to share with you our DBA Family’s personal story. Please note the medical information may not be entirely accurate and should not be used for diagnosis or treatment options.

 

 

Boy with rare disease inspires blood donors, by Arlene Gross. December 10, 2009. North Shore of Long Island - Times Beacon Record.

 

 

Blood Drive in honor of Audrey Nethery in Oldham County Schools Arts Center, by Scott Nethery. October 30, 2009.

 

 

Blood Drive to be held for Florence girl with rare blood disorder. October 2, 2009. MyBCTnow.com.

 

 

Tenacious toddler owes smile to donors. Adelaide Advertiser, 07/09/09, General News, Page 3.

 

 

A Tattoo of Pride and Hope:

 

Our logo never looked so beautiful!!  Shelly Marquer, an adult DBA patient with a real fear of needles, proudly and triumphantly displays her new tattoo.  If you look closely, you will notice a space between the words Cure and DBA.  Shelly states, "If, in my lifetime, a cure is discovered, I can go back and have a 'd' tattooed in that space. Then, it will say 'Cured DBA'. There's always hope." Together, let's work on getting that "d".

CSU ENGINEERING STUDENTS DESIGNING MEDICAL WAGON FOR CHILDREN’S HOSPITALS, March 23, 2009, Colorado State University News

 

 

Congratulations to the Bell Family for being selected for ABC's Extreme Makeover: Home Edition - Tucson, AZ - originally aired March 22nd 8:00pm. The episode is still available to watch online at http://abc.go.com/primetime/xtremehome

On January 27, 2009, American Red Cross hero Lizzie Bell and her family were greeted and whisked away by Ty Pennington and “Extreme Makeover: Home Edition”. While their house was under construction, the Bells were further surprised and congratulated by other DBA families at a DBA luncheon in Schneider's Hospital on January 31, 2009.

To follow along click here: The Bell's Extreme Makeover: Home Edition - Tuscon, Arizona.