DBA Family Day- California

Date: Saturday, October 2, 2010
Time: 11am -4pm (lunch included)

Join us for a day of DBA research updates, and more!
Lucile Packard Children's Hospital at Stanford, Palo Alto, California.

We have an exciting agenda planned and welcome your input, please let us know if there is a topic you are interested in hearing about. This event is open to anyone (patients, families, friends, adults and children) interested in DBA. There is no charge to participate in this event.

For questions, requests, or to register, please email:
Kirsten Mouradian, R.N. & Dr. Bert Glader at kmouradian@lpch.org
(650) 724-2448 (Pacific Time)

 

 

DBA Family Day - Texas
Date: Saturday, November 6, 2010
Time: 9:00am - 4:00 pm

Children’s Medical Center Dallas & The University of Texas Southwestern Medical Center, Dallas Texas will sponsor its second DBA Family Day!

Free to everyone interested in DBA regardless of where you receive health care, but we need to know you are coming.

This day will bring DBA patients in the central and southwest United States and their families together for the purposes of becoming acquainted, sharing stories or experiences, and receiving up-to-date medical updates and news.

For more information, to suggest areas you would like to discuss, request translation services, AND to register to take part in this special day please contact Debbie Boger.

Debbie Boger, R.N.
(214) 456-6102            
deborah.boger@childrens.com
BoneMarrowFailure@UTSouthwestern.edu

For more information, please contact:
Deborah Boger, DBA Nurse Coordinator
214.456.6472 (Central Time)

 

 

DBA DAY - New York
Date: Saturday, November 13, 2010
Time: 9am - 4pm

DBA Day! At The Steven & Alexandra Cohen Children's Medical Center of New York (formerly Schneider Children's Hospital)

Join us for a day of learning about DBA. Topics to be discussed will include:
* Diagnosis
* Genetics and Reproductive Medicine
* Treatment - Corticosteroids and Transfusion Therapy
* Stem Cell Transplantation
* Iron Overload

Entertainment will be provided for the children. Lunch and snacks for all, no charge. Space is limited so please reserve early by calling/e-mailing:

Ellen Muir, MSN, CNS
877-DBA-NURSe (877-322-6877) or emuir@nshs.edu