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Cameron 12 years old

DBA Care Notebook

Managing Your DBA Care: A Notebook for Families

 

Whether you have Diamond Blackfan anemia (DBA) or you have a child with DBA, creating a notebook to manage your DBA care is a good idea. The DBA Care Notebook was created by the CDC with the assistance of the Resource Center Nurses and our DBA families. Click on the “Instructions” document below to get started.

Instructions

Contact Information for the DBA Medical Team

DBA Doctors/Providers Fact Sheet

Doctor Visits and Hospitalizations

Growth Charts

Growth Chart for Girls - Birth to 36 Months

Growth Chart for Girls - 2 to 20 Years

Growth Chart for Boys - Birth to 36 Months

Growth Chart for Boys - 2 to 20 Years

Medication Log Sheet

Laboratory Testing

Transfusion Log Sheet

Vaccination Log

Resources

Notes Pages

Binder Cover