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Our Mission

To support and educate.
To advocate for our community.

To advance research and find a cure for
Diamond Blackfan Anemia Syndrome.

"It is because of these faces and hundreds more unseen, in collaboration with the dedication, hard work, and the love of all our DBA families that we continue to exist. It is because of our passion to ensure our loved ones a better life that we remain solidly committed to our mission."

-Dawn M. Baumgardner, Executive Director

In the Spotlight

Find answers to the most frequently asked questions about DBA Syndrome.

You may be eligible for the new trial at NIH for DBA syndrome adult patients.

Learn about the treosulfan trial, which may reduce complications during the stem cell transplant process.

Early detection is crucial. View the new colonoscopy recommendations here.

Support our cause through financial contributions. Thank you for your kindness!

Our Impact

Funded over
$
in Research & Education
Supported Families in
Countries
Raised over
$
in the Last 5 Years

Be part of our community as we work to find a cure.