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OUR MISSION: The mission of the Diamond Blackfan Anemia Foundation, Inc. (DBAF) is "to collectively and actively generate funds for the charitable and scientific purpose of furthering, by clinical study, laboratory research, publication and teaching, the knowledge of the disorder known as Diamond Blackfan Anemia (DBA). Our intentions are to share this knowledge, to inform, to lend support, and to communicate with all families of DBA patients."

OUR ORIGIN: The DBAF was founded in 1994 by parents of children with Diamond Blackfan Anemia (DBA). The DBAF is a New York not-for-profit foundation registered with the Charities Bureau of New York State Department of Law, 120 Broadway, New York, New York 10271.

THE DBAF TODAY: The DBAF supports itself solely through donations and is staffed exclusively by volunteers. The DBAF also funds medical research projects approved by its scientific advisory board. It organizes family meetings, publishes a semi-annual newsletter, and provides literature for those directly affected by DBA.

ABOUT DBA:
Diamond Blackfan anemia (DBA) is a rare red blood cell anemia usually diagnosed within the first two years of life. DBA patients are treated with steroids, usually prednisilone, and/or placed on a chronic red cell transfusion program. Bone marrow transplantation is only an option in very serious cases and when the patient has an HLA identical sibling match.

 
 
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